Monday, January 12, 2009

Iron Infusions

There hasn't been too much going on around here lately. The weekend was spent lying around and putting up Christmas. Literally. I accomplished no house projects or laundry or bathroom cleaning.

Today I spent the day getting my first iron infusion. And I mean the ENTIRE DAY. I went in at 8am for labs, then it was off to the oncologist's office to discuss the infusions and course of treatment for all my low blood counts over the next few weeks and then it was off to the "chemo delivery room." I'm not sure what the real name for it is, but it's where everyone is lined up in hospital recliners all hooked up to IV's receiving various methods of chemo. Well, except for me and one other guy who was also getting iron treatments. It was a little surreal. I got there around 9:30am. They checked my temp and blood pressure and started the IV. Only two sticks this time, thank you very much. Then I had to get a bag to saline into my system. Then a small bag of something that had something to do with anti-rejection. It started with a "D." Then a bag of Benadryl to help with allergic reactions to the iron. That pretty much knocked me out. After that, they did a test run of the iron. One in three people have an allergic reaction so they test you first to make sure you can tolerate it. I've had reactions to blood transfusions before and apparently the reaction to the iron is pretty similiar. I was fine. Then it was time to start the Big Dose. They started that a little after noon and it took over 2 hours! I didn't get to leave until 2:45pm. It was kind of like going on a really long car ride without actually getting anywhere and there really wasn't anything to look forward to. Brad kept the children at the house all morning. He tried to work and when Eli just wouldn't leave him alone, he called another little boy down the street to come over and play. When his mom, Kristy, found out what was going on, she became my knight in shining armor. She let Brad keep her son while she ran her younger daughter to ballet and then took my children home for lunch and to play all afternoon. It was an absolute life-saver. About that time, I was getting really bored and antsy so Brad was able to come and hang out for the last hour of treatment and then take me to a really late lunch. More like a lunner! I had taken a book with me but the anti-rejection medications made me very dizzy and it was hard to read and they had a TV there you can watch, but it was kind of a common TV and the "chemo room" is very quiet and depressing and I just felt a little bad turning it on. There were snacks, too, but one can only eat so many granola bars and cheese crackers. Unfortunately, one of the side effects to the iron infusions is feeling like you have the flu once the benadryl wears off. It gradually tapers off and by tomorrow I'll feel as good as new...maybe even better if my blood counts do what they are supposed to. While we were at lunch, Brad had a work emergency he needed to go see about and I just needed to go to bed so Kristy just kept my children at her house. She even offered to feed them dinner, but we had bowls of cereal waiting at home. Seriously, we're pretty upscale around here sometimes! :) Thank you, thank you, thank you Kristy!

It was the first time I'd actually been around people who were getting IV chemo. My treatment has always been surgery or a pill. That place is a little depressing. The nurses are really great. They bring you warm blankets and coffee and share their personal pumpkin spice creamer when the waiting room is out of creamer and make sure you have everything you need, but everyone in there is just sick. No way to get around that. There were people there shrinking their tumors so they could have a mastectomy and people there on their last chemo treatment after having done it for twos year and people there with more tubes than you can count. I felt a little guilty just getting iron. It gave me lots of time to admire people maintaining their dignity in the face of the horrible. People of all ages and races and walks of life just doing what they need to do.Not too many visitors stay for the IV part, it seems. There aren't many extra chairs. Plus, what are they gonna do? I did learn that a normal chemo treatment takes about 1 1/2 to 2 hours so the caregivers usually go do a little errand running or medicine picking up or whatever. If it didn't mean that someone I loved was sick, I would have rather been one of those people.

The best part of today was that I was told I only had to get one iron infusion this week. They are going to check my blood counts on Wednesday and Friday and give me B-12 shots on those days, as well, but no iron infusions until next Monday. It should be faster next Monday, too, since they don't have to do all the preliminary testing to make sure I don't have a reaction. It should only take about three hours on Monday. Sheesh. I'm going to make Brad let me take his laptop so I can do some catch-up on the blogging. Maybe I'll even check my Facebook account again. :)

8 comments:

Kristen said...

Glad everything went ok. Glad we got to chat for a little bit today! Always praying for you! :)
LOVE you!

Anonymous said...

Hey there,
While your last two posts make my chest hurt and my eyes leak, they are important. They are not the most important, because that would undermine the significance of posts about Brad and Eli and Phoebe, but they do remind us all that this life is a battle, not a vacation. If this daddy could change it all, he would, but then I wonder if it would change the essential part that is uniquely you.
Prayers do not even describe what I am lifting up to God.
Love you, see you soon.
Dad

Anonymous said...

I have been doing IV chemo for 5 years now, on/off between surgeries....you're right it is depressing but we have to think positive and try and get through it without much thought to whats going on...sue

http://cancersucksbigtime.wordpress.com/

Lori said...

Your post made me cry for all the people you came in contact with. I'll be finding you on fb :-)

Anonymous said...

YAY for Facebook....way to stay update to date techy!

Sorry about your day yesterday, hope your week gets better!

Love ya!

Lori Harper said...

Thank you for this post. We have so many in our church with cancer or on dialysis and taking treatments right now and though I pray daily for them (and you), I often wonder what more I can do. With work, I can't drive them or be with them but I could certainly lend my laptop or my ipod.

I loved reading your Dad's response. As much as he loves you, itsn't it amazing to know your heavenly father loves you even more!

Lori Harper said...
This comment has been removed by the author.
Anonymous said...

Jordan,
You don't know me, but I am Amber (Stewart) Smith's mom. I've been reading your blog regularly for some time, because you really are a talented writer and have a knack for putting things you are feeling into words. I felt compelled to comment this time because I related so much to what you are feeling right now. Although my children are mostly grown ( still have a high school freshman at home), I remember seasons of my life when I was guilt ridden for not giving my children what I thought they deserved. Your dad is right--they will probably only remember the many good things you do with them. But even if they remember some of the more difficult times, God will use this circumstance to help them in some way to be better, stronger, more able to serve (even though they are small)
I am now undergoing chemo too. I too, think the chemo room might be the one of the most difficult thing about the treatments--although the fatigue and nausea aren't great either. But I have been AMAZED at the power of prayer, and the unselfish ministry of my friends and church family. Let them serve you!! It is a blessing to them and to you. I have been praying for you off and on for years, but now I will put you on my daily list. You were an inspiration to me even before I was diagnosed, but in my present circumstance I have even more admiration for your spirit. You are a GOOD MOM!

Sorry for the long post.
Blessings!
Mayre Stewart